As some of you may know, I have been struggling with some issues with Kaeson for the past couple of years. He is a tender hearted, darling boy that is a complete people pleaser. I honestly couldn’t love him any more than I do. However, he has a thick stream of activity, rambunctiousness and eccentricities that run through his tiny body.
Being concerned with some of his behaviors, I consulted our pediatrician. She thought that he suffered from some anxiety issues. She encouraged us to visit the Children’s Center for a second opinion and evaluation.
I left the Children’s Center as a puddle of tears. In a nut shell, I was told that I was not a good mother, that I couldn’t handle my child and that I should seek professional counseling for myself. I immediately called the pediatrician (we have become great friends in all reality) and explained the scenario. She apologized profusely and told me that they were out of line and that I was in all reality a “fantastic mother.”
It was suggested to me to go to the Health Department to have him observed by their staff. That particular appointment was a few months ago. The doctor who saw Kaeson immediately diagnosed him with Asperger’s Syndrome with that first visit. The developmental pediatrician encouraged us to try the Casein Free Gluten Free (GFCF) diet. That meant nothing with any gluten (wheat flour, oats, malt, etc) and nothing with any milk derivatives (milk, cheese, butter, etc.) I again left as a ball of tears but, hit the diet and the therapeutic recommendations full force.
A few weeks ago, our pediatrician received the notes that the Health Department. She called me the evening that she received them. She was completely and totally opposed to the diagnosis and had already called her associates to schedule a meeting of the minds to observe, interact with and come up with a solution for Kaeson.
Today was our appointment. We met with our team of specialists to observe and evaluate Kaeson. They played with him, did developmental assessments and just watched him play. At the end of the appointment, the doctors happened to all be in agreement. Although Kaeson does demonstrate some characteristics that are found in children with Asperger’s Syndrome, he has characteristics that absolutely, without a doubt kick him out that category.
Yes, Kaeson will be a bit of a difficult child. Yes, I will have to practice a lot more patience, discipline, love and determination with this particular kiddo. Yes, he will have issues. They say that Kaeson has some eccentricities and some major anxiety issues. However, he is in a position that he can grow out of most of it and if his symptoms continue at the level that they are now, he can be put on some very mild medications to help him deal with his anxiety.
For the first time in 2 years, I feel that there is a light at the end of the tunnel with my child. I left the appointment not only tear free but also with a sense of peace that we were now headed on the right path. We immediately kicked the GFCF diet in the kiester since this new group of doctors said that it would only agitate his anxiety level. He came home with me and we had macaroni and cheese and ice cream for lunch.